Today I am so angry and sad I can’t even see straight. Let
me start with what happened yesterday at school with Cam and then will get to
today that has me so upset. Yesterday at pick up Cam’s teacher informed me that
out of nowhere when she asked Cam to stop talking in line he screamed out “I
have Asperger’s and it makes it hard for me to like people!” Clearly this had
nothing to do with what she asked him but it was a huge red flag to me that he
is struggling internally. She then told me that his art teacher told her that
he has said that to her a few times when he didn’t want to do something. Wish I
would have known this when it happened instead of weeks or maybe months later
but the point is now I know. So last night Cam and I had a long talk…well I talked
while he looked down at the ground and pulled at his arm. The pulling at his
arm is his “stimming” or he plays with his fingers in his mouth. But, either
way he was listening. I told him that he can’t just scream it out, he can’t use
it as an excuse to not do things in life and that if he had any questions he
could always come to me. I tried my hardest to point out all of the wonderful
aspects of him that comes because of his Asperger’s because that is what I want
him to look at…not all of the struggles he faces every second of every day. He
didn’t say much but asked if he could go play with his Legos. I wish I knew
what was going on inside his head….I wish he knew how to share it all with me.
So fast-forward to drop off this morning. I told his teacher
that I had a talk with him and I can tell he is struggling internally but I
told him he couldn’t just scream it out. It is her response that upsets me so
much. She informs me that she is worried that the little ears in the classroom
will repeat to their parents that he has Asperger’s and it will cause problems.
WHAT?! Then goes on to tell me that he already has problems with certain kids
in the classroom and this could escalate the parent’s reactions and cause a lot
of problems. My response was “their kid can’t catch it and these parents need
to be educated!” Then I get told well parents can be cruel and we just don’t
want it be an issue and we don’t want him talking about.
Ok, now I am angry and sad! I leave there in tears and
screaming in my car. I am doing EVERYTHING I can to make sure Cam is
comfortable in his own skin and proud of who he is! And now I am being told
that they don’t want him talking about who he is because of other parent’s
issues. Are you freaking kidding me?!?! Why can’t we just educate these parents
and explain to them about Cam. Educate them about how wonderful he is and yes
he may have Asperger’s and it isn’t always pretty but he is still an incredible
little boy whom their child would be lucky to have in their life as a friend. Why
must he be quiet when he is struggling internally and this is his way of
letting it out? You are telling me to tell my child not to be him and I am NOT
ok with that…at all! So, let him struggle, let him spiral down because he can’t
be him and he can’t let people know about him? He is struggling to understand
himself and maybe talking about it or hell screaming it makes him feel
better….but you’re telling me you don’t want that because of what other parents
might think. ARE YOU FREAKING KIDDING ME?!!?! I am so upset right now that I am
sure most of this is not making sense. But, I just don’t understand how we as a
society can make our children comfortable in their own skin if we are telling
them to hide it because of what others may think. Why do children get bullied?
Because the bullies are not taught to be kind to children who are different. So
my child doesn’t fit in your perfect square, he is perfect to me and if you
would open your eyes you would see that! What the hell is wrong with our world
that a child can’t be different and it be ok?
O.M.G. I wish I would of read this yesterday.
ReplyDeleteIm just seriously appalled, people are so incredibly ignorant.
So here is what I propose.
I say we start a "conference" so to speak (maybe we could get funding from Autism Speaks or maybe we could be a non profit ourselves to raise the funds) but I think this is a HUGE issue, and something needs to be done. So Start of each School year (maybe 1st or 2nd week) we go into the local schools in our area with speakers, moms, dads whoever (we could have an agenda) not long maybe an hour, Offer Coffee and refreshments to entice them in, and INFORM and EDUCATE and TEACH people about Autism, and guess what? You might have someone in your class, and thats ok! INVITE Them to bring their kids (especially in the high school) Yup! Thats what I propose! I think not only would it raise the awareness we want anyway, apparently we need to do some educating.